Telegenetics

108 clinics were supported by the RGNs to provide telehealth services from June 2021 to May 2022.

The seven Regional Genetics Networks (RGNs) support patients and healthcare providers to access genetic services via telehealth, also known as telegenetics. Support includes training of providers and technical assistance to clinics. By offering this support, the RGNs help improve access for patients who are unable to go to a genetics appointment in-person.

We use zip code data to determine if an individual or provider comes from an underserved area as defined by the Health Resources and Services Administration (HRSA). To learn more about our data collection and evaluation program, please click here.

Below are select data from the RGNs related to their telegenetic activities.

Telegenetics Training

Our Previous Year (June 2021-May 2022)

Providers Trained

To help educate providers on how to integrate genetics into their clinical practice, the RGNs have offered telegenetics training programs and technical assistance since 2017.

The COVID-19 pandemic led to the widespread use of telehealth. Due to this, the need for training has decreased. In Year 5 (June 2021-May 2022), the RGNs began exploring opportunities to address future needs. To be kept up to date on what services your RGN can offer to providers related to telegenetics, contact your RGN here.

Trends from June 2017-May 2022

As noted above, the RGN system has been offering telegenetics training and technical assistance since at least 2017. This led to many providers being prepared for the change in care that was needed due to COVID-19. To learn more about what particular telegenetics training is implemented by some of the RGNs, explore WSRGN’s telegenetics training here.

Providers Participating in Telegenetics Trainings

Number of providers participating in telegenetics training by specialty type from Year 1-5

88.8% (n=923) of providers trained were genetics specialists.

Clinics Supported

Our Previous Year (June 2021-May 2022)

Clinics Supported

The RGNs also provide support to clinics to help them offer telegenetics to their patients. Support can include providing funding or equipment to a site or offering technical assistance or quality improvement to a clinic.

In Year 5 (June 2021- May 2022), the RGNs supported sites both on the patient side (originating site) and on the provider side (distant site). Through the RGNs support, 108 sites were supported. 

Trends from June 2017-May 2022

As displayed below, the RGNS have worked to increase the number of clinics supported to offer telegenetics to patients. Due to COVID-19, Year 3 (June 2019-May 2020) saw an increase in clinic sites, some of which did not need the support of the RGNs as the pandemic progressed.

Telegenetics Clinics Supported

Clinic sites from Years 1 to 5

77.3% (n=494) of clinics supported were from an underserved area. 

Please note that home sites supported are excluded from the visualization due to changes in how that data has been collected over the years.

Patients Seen via Telegenetics

Our Previous Year (June 2021-May 2022)

Patients Served

In Year 5 (June 2021-May 2022), the RGNs assisted patients in seeing providers via telehealth through clinic support (highlighted above).

Trends from June 2017-May 2022

As displayed below, the RGNs have worked to increase patients seen via telegenetics over the last five years. Due to changes in the RGNs goals, in Years 1-3 (June 2017-May 2020), patients were counted through supported through telegenetics training/technical assistance or clinic support. In Year 5 (June 2021- May 2022), patients are counted as receiving support if the RGN supported the clinic in providing telegenetics to the patient.

Patients Seen via Telegenetics

Number of patients seen via telegenetics support from Years 1-5.

56.3% (n=34,556) of telegenetics patients whose zip code was known were identified as coming from an undeserved area.