Education and Training

170 educational events were held by the RGN/NCC/NGEFSC System from June 2021 to May 2022.

The seven Regional Genetics Networks (RGNs), the National Coordinating Center for the Regional Genetics Networks (NCC), and the National Genetics Education and Family Support Center (Family Center) educate and train people on genetics and the genetic service delivery system.

Specifically, the system focuses on developing education and training activities that help reach underserved populations. We use zip code data to determine if an individual or provider comes from an underserved area as defined by the Health Resources and Services Administration (HRSA). To learn more about our data collection and evaluation program, please click here.

Below are select data from our education and training efforts, including examples from across the country.

Providers

Our Previous Year (June 2021-May 2022)

Providers Served

The RGN/NCC/NGEFSC system work with professionals, including genetic providers, non-genetics providers, public health professionals, allied health professionals, students, and many more. The goal is to educate on either a specific topic/condition in genetics or to educate them on system-wide initiatives, such as telehealth, to improve access to genetic services.

In Year 5 (June 2021- May 2022), the system reached over 4,100 providers. These providers participated in events such as NERGN’s Project ECHO series, NCC’s Healthcare Interpreter Training program, and MSRGN’s Time 4 Genetics education webinars.

Trends from June 2017-May 2022

Beyond the educational activities held in Year 5, our system has worked over the last five years to provide education and training to as many providers as possible. As noted in the chart below, our system has been increasing the number of providers served per year, excluding Year 4, which saw a spike due to virtual events held due to COVID-19.

Over the last five years, educational offerings have included, SERN’s eGNA platform, which helps provide education to metabolic dietitians, NYMAC’s Annual Meeting, and WSRGN’s Minority Genetics Professionals Network events.

Providers Participating in RGN/NCC/NGEFSC Education or Training Activities

Number of providers participated in education and training from Years 1-5

69.4% (n=8,628) of providers who provided their zip code and participated in an education or training activity were identified as practicing in underserved areas from June 2017 to May 2022. 

Individuals/Families

Our Previous Year (June 2021-May 2022)

Individuals/Families Served

In addition to educating and training providers, the RGN/NCC/NGEFSC system assists in the education and training of individuals and families who have or are at risk for genetic conditions.

In Year 5 (June 2021-May 2022), the system reached over 900 individuals and families through a variety of efforts including, but not limited to, NGEFSC’s webinars, MSRGN’s Genetic Pop-Ups, MGN’s “Partners Partnering for Change”, an advocacy training program.

Trends from June 2017-May 2022

As displayed below, the RGN/NCC/NGEFSC system has, over the past five years, worked to reach individuals and families through genetics education and/or training. Some activities are targeted to underserved populations, such as HRGN’s educational partnership with the Marshallese population.

Individuals/Families Participating in RGN/NCC/NGEFSC Education or Training Activities

Number of individuals/families served by the RGN/NCC/NGEFSC system from June 2021-May 2022 broken down by provider type.

81.9% (n=4,364) of individuals/families who provided their zip code and participated in an education or training activity were from underserved areas from June 2017 to May 2022.