Improving Access to Genetic Services for Underserved Populations
The National Coordinating Center for the Regional Genetics Networks (NCC) works with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) work together toward this mission.
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Activities
NCC develops tools and resources to help improve access to genetic services for underserved populations.
Our efforts include the development of educational materials related to the genetic service delivery system and genetics policy; assessing the genetics workforce; raising awareness about the field of public health genetics; and supporting the seven Regional Genetics Networks.
ACMG ACT Sheets and Algorithms
NCC supports the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.
Genetics Policy Hub
In our Genetics Policy Hub, find the latest information about genetics policy from across the U.S.
Healthcare Interpreter Training
Curricula have been developed to educate healthcare interpreters on genetics.
Resource Repository
NCC’s Resource Repository includes over 600 resources to help support the genetic service delivery system.
Find a Genetics Clinic Directory
Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.
Genetics Workforce
NCC routinely assesses and publishes information about the capacity of the genetics workforce.
Public Health Genetics Week
Held in May annually, PHGW raises awareness about the field of public health genetics.
Webinars
Webinars are held on a variety of topics from current genetics policies to evidence-based guidelines
Upcoming Events
NCC hosts events and publishes events from across our system and our national partners on our monthly calendar.
Twitter Feed
RT @NCCRCG: Have you registered for the first webinar of the GPH Webinar Series? We are partnering with SERN on April 4 at 12 PM ET to shar… Read More
RT @ExpectHealthOrg: Check out this amazing new leadership training opportunity from The Family Center! #familyleaders #familyleadership #… Read More
RT @TheABMGG: We are one week out from the close of the 2023 Genetics Workforce survey, a partnership between us and @nccrcg. Check your in… Read More
RT @ISONG_news: We are one week out from the close of the 2023 Genetics Workforce survey, a partnership between us and @nccrcg. Check your… Read More
RT @ISONG_news: You're invited to our joint webinar with Eastern Nursing Research Society (ENRS) on April 3, 12-1 pm EDT via Zoom. Mark you… Read More
RT @ExpectHealthOrg: We know that #NBS advocates want to ensure that info about dried blood spot storage and use is easily understood by fa… Read More
RT @ISONG_news: Have you filled out the 2023 Genetics Workforce survey from us and @nccrcg? Your voice is critical to creating a clear nati… Read More
Before #SIMD2023 ends, explore specific @theACMG #ACTSheet through a 7-minute animated video with us! The NCC Knowledge Nugget Series elaborate on #NewbornScreening conditions and are also CME-eligible! Swing by Booth 102 or visit: https://t.co/M3I8m9NLpr Read More