Improving Access to Genetic Services for Underserved Populations
The National Coordinating Center for the Regional Genetics Networks (NCC) works with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) work together toward this mission.
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2022 in Review
Click through the timeline to see what we have been up to in 2022!
Activities
NCC develops tools and resources to help improve access to genetic services for underserved populations.
Our efforts include the development of educational materials related to the genetic service delivery system and genetics policy; assessing the genetics workforce; raising awareness about the field of public health genetics; and supporting the seven Regional Genetics Networks.
ACMG ACT Sheets and Algorithms
NCC supports the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.
Genetics Policy Hub
In our Genetics Policy Hub, find the latest information about genetics policy from across the U.S.
Healthcare Interpreter Training
Curricula have been developed to educate healthcare interpreters on genetics.
Resource Repository
NCC’s Resource Repository includes over 600 resources to help support the genetic service delivery system.
Find a Genetics Clinic Directory
Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.
Genetics Workforce
NCC routinely assesses and publishes information about the capacity of the genetics workforce.
Public Health Genetics Week
Held in May annually, PHGW raises awareness about the field of public health genetics.
Webinars
Webinars are held on a variety of topics from current genetics policies to evidence-based guidelines
Upcoming Events
NCC hosts events and publishes events from across our system and our national partners on our monthly calendar.
Twitter Feed
The week-long celebration for Lunar New Year continues! Celebrate by bridging the language barrier between non-English speakers with our Healthcare Interpreters Training Glossaries in Vietnamese, Korean, Tagalog, and Chinese. https://t.co/cBLOen7gu3 Read More
Have you seen @negenetics series yet? In partnership with the Weitzman Institute, NERGN holds monthly genetics webinars that cover a host of topics ranging from #PKU to Direct to Consumer Testing. Watch archived webinars and sign up for future webinars at: https://t.co/zh4Nh839po Read More
Are you a geneticist, a PA in genetics, or genetic nurse? The workforce survey will be coming to you soon as well! Be on the lookout for your workforce survey from our other partners (ABMGG, SPAGG, ISONG) over the next week! Read More
Metabolic dietitians, NCC is thrilled to partner with GMDI to launch our 2023 Genetics Workforce Survey- a survey to better understand the capacity of the #genetics #workforce. If you are a metabolic dietitian in the U.S., check your inbox now for the survey link from GMDI! https://t.co/JSdEfxawJA Read More
RT @GeneticsSociety: Today ASHG released the report of the Society’s “Facing Our History – Building an Equitable Future” initiative. Read… Read More
RT @NGEFSC: Still need to check out our podcast series, Linked Together? No worries! Here’s the link to all of the episodes: https://t.co/w… Read More
Are you a healthcare interpreter that works in #DE, #DC, #MD, #NJ, #NY, #PA, #PR, #USVI, #VA, or #WV? Join us and NYMAC on February 4 and 11 for a free virtual seven-hour training on #CancerGenetics and earn CEU! Register at: https://t.co/SvYYsPkjG9 Read More
It's our first newsletter of 2023! See our new healthcare interpreter resources (#CancerGenetics curriculum, new languages for our glossaries), new data from our system about how we improve access to #genetic services for underserved populations, and more. https://t.co/63EgA0gDGX Read More