Improving Access to Genetic Services for Underserved Populations
The National Coordinating Center for the Regional Genetics Networks (NCC) works with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) work together toward this mission.
WSRGN 1
Activities
NCC develops tools and resources to help improve access to genetic services for underserved populations.
Our efforts include the development of educational materials related to the genetic service delivery system and genetics policy; assessing the genetics workforce; raising awareness about the field of public health genetics; and supporting the seven Regional Genetics Networks.
ACMG ACT Sheets and Algorithms
NCC supports the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.
Genetics Policy Hub
In our Genetics Policy Hub, find the latest information about genetics policy from across the U.S.
Healthcare Interpreter Training
Curricula have been developed to educate healthcare interpreters on genetics.
Resource Repository
NCC’s Resource Repository includes over 600 resources to help support the genetic service delivery system.
Find a Genetics Clinic Directory
Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.
Genetics Workforce
NCC routinely assesses and publishes information about the capacity of the genetics workforce.
Public Health Genetics Week
Held in May annually, PHGW raises awareness about the field of public health genetics.
Webinars
Webinars are held on a variety of topics from current genetics policies to evidence-based guidelines
Upcoming Events
NCC hosts events and publishes events from across our system and our national partners on our monthly calendar.
Twitter Feed
RT @CaliforniaTRC: Want to get your clinic's info in front of more eyes 👀? Add your TH practice to CTRC's growing inventory of #Telemedicin… Read More
RT @genome_gov: Join @genome_gov on February 16, at 3:30 p.m. ET for our Genomics and Health Disparities Lecture. @cjimmylin, founder of @R… Read More
RT @HRSAgov: Today #HRSA commemorates National Black HIV/AIDS Awareness Day (#NBHAAD). The #RyanWhite HIV/AIDS Program remains committed to… Read More
RT @ExpectHealthOrg: In 1951, Henrietta Lacks made her mark on the medical science world and continues to do so today. Upon visiting The Jo… Read More
RT @ncats_nih_gov: Join us on Feb. 22, 1–3 p.m. EST for a #RareDiseases Twitter chat! Experts will answer questions on — ✅ #GeneTherapy ✅ #… Read More
Please join NYMAC for this FREE online event, where you can interact with advocates, families, providers and industry partners in our region, learn about the happenings in your state/territory and find new ways to become involved in our efforts. Join us at https://t.co/UTQFd3bQZ1 Read More
RT @CDC_Genomics: The CDC Genomics and Precision Health Weekly Update spotlights next week’s symposium reflecting on the field of public he… Read More
For Black History Month, we celebrate Black people who have contributed to #genetics. Follow @BlackInGenetics, an organization dedicated to amplifying voices and work by Black-identifying geneticists. #BlackHistoryMonth #BlackinGenetics https://t.co/ozETIZ8ZAQ Read More