Improving Access to Genetic Services for Underserved Populations
The National Coordinating Center for the Regional Genetics Networks (NCC) works with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) work together toward this mission.
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Activities
NCC develops tools and resources to help improve access to genetic services for underserved populations.
Our efforts include the development of educational materials related to the genetic service delivery system and genetics policy; assessing the genetics workforce; raising awareness about the field of public health genetics; and supporting the seven Regional Genetics Networks.
ACMG ACT Sheets and Algorithms
NCC supports the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.
Genetics Policy Hub
In our Genetics Policy Hub, find the latest information about genetics policy from across the U.S.
Healthcare Interpreter Training
Curricula have been developed to educate healthcare interpreters on genetics.
Resource Repository
NCC’s ReRe includes over 600 resources to help support the genetic service delivery system.
Find a Genetics Clinic Directory
Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.
Genetics Workforce
NCC routinely assesses and publishes information about the capacity of the genetics workforce.
Public Health Genetics Week
Held in May annually, PHGW raises awareness about the field of public health genetics.
Webinars
Webinars are held on a variety of topics from current genetics policies to evidence-based guidelines
Upcoming Events
NCC hosts events and publishes events from across our system and our national partners on our monthly calendar.
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The #ACHDNC advises the Secretary of @HHSGov on the most appropriate application of universal #NewbornScreening tests, technologies, policies, guidelines, and standards. To learn more about the committee and stay relevant, visit #2022NBS https://t.co/6uCmizDBLQ Read More
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RT @CDC_Genomics: Calling on All of Us Public Health Scientists! Read our blog post and join us this Thursday for a webinar on how to use @… Read More
RT @CDC_Genomics: Sign up TODAY to attend our October 24 webinar: Coronary heart disease, family history and public health- From familial… Read More
#TelehealthAwarenessWeek is coming to end 😔 But that doesn't mean we don't have more resources! Interested in learning how to set up a #telehealth genetics practice? Check out NYMAC's Telegenetics Program Planning guide: #TelehealthIsHealth https://t.co/wteTweAGhH Read More
Do you or someone you know work with Spanish-speaking families? Be sure to watch Heartland's Spanish language video that explains the process for #NewbornScreening for #genetic conditions. Watch the video at #2022NBS https://t.co/ibWaUacRGM Read More
RT @BlackInGenetics: Make sure your undergrads tune in next week on Thursday, Oct 6th to learn about getting into grad school! As a part of… Read More