Improving Access to Genetic Services for Underserved Populations
The National Coordinating Center for the Regional Genetics Networks (NCC) works with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) work together toward this mission.
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Activities
NCC develops tools and resources to help improve access to genetic services for underserved populations.
Our efforts include the development of educational materials related to the genetic service delivery system and genetics policy; assessing the genetics workforce; raising awareness about the field of public health genetics; and supporting the seven Regional Genetics Networks.
ACMG ACT Sheets and Algorithms
NCC supports the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.
Genetics Policy Hub
In our Genetics Policy Hub, find the latest information about genetics policy from across the U.S.
Healthcare Interpreter Training
Curricula have been developed to educate healthcare interpreters on genetics.
Resource Repository
NCC’s ReRe includes over 600 resources to help support the genetic service delivery system.
Find a Genetics Clinic Directory
Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.
Genetics Workforce
NCC routinely assesses and publishes information about the capacity of the genetics workforce.
Public Health Genetics Week
Held in May annually, PHGW raises awareness about the field of public health genetics.
Webinars
Webinars are held on a variety of topics from current genetics policies to evidence-based guidelines
Upcoming Events
NCC hosts events and publishes events from across our system and our national partners on our monthly calendar.
Twitter Feed
#DYK that NCC have a Healthcare Interpreter Training program? NCC offers three different training programs aimed at helping healthcare interpreters to understand #genetics. Check them out at: https://t.co/Izj77tbGQZ Read More
RT @VenceBonham: Join #NHGRI on 10/4 @ 2PM for a webinar about the Diversity Centers for Genome Research FOAs. These FOAs request applicati… Read More
RT @BerryS730: Excited to see new and improved tools from @NCCRCG. ReRe! and @GeneticsPolicy Loo them up! #MGNAtWork Read More
RT @GeneticsPolicy: On September 15, 2022, the U.S. House and Senate introduced a bill to require @HHSGov to expand funding for eligible en… Read More
RT @ELSIhub: Enhance your research with our database of #ELSI research tools, including interview guides, psychometric scales, surveys, par… Read More
RT @medhomeportal: Check out this SPARK for Autism webinar Developmental Regression in Autism Spectrum Disorder via… Read More
RT @Region4Genetics: Don't miss our Facebook Live today at 11:30 a.m. to hear @CSHPatWork's director, @mjedick and executive director of th… Read More
RT @APHL: We are wrapping up Newborn Screening Awareness Month with part 2 of our Twitter chat with @ExpectHealthOrg! Parents, get answers… Read More