Resource Details
Referral to Support and Partnering With Family-Led Organizations: A Reference Guide by Regional Genetics Networks
Family Organizations by RGN
Submit A Resource
Is a resource missing? Submit your resource here.
Topics in Resource Repository
Awareness Campaign (5)Breastfeeding (1)Care Coordination (9)Careers (2)Carrier Screening (6)Condition Specific (68)Consumer Advocacy (2)COVID-19 (60)Cystic Fibrosis (1)Diagnostic Test (2)Dismantling Racism/Implicit Bias (8)Diversity (1)Diversity, Equity, Inclusion and Justice (50)Education (393)ELSI (1)Emergency Preparedness (14)Evaluation (8)Family Health History (9)Family History (1)Family Support (114)Genetic Service System (76)Genetic Test (24)Genetics Privacy (3)Health Equity (5)Health Literacy (4)Healthcare Access (17)Healthcare Access and Financing (81)Healthcare Interpreting (69)LGBTQ+ (3)Medicaid (1)Medical Food (18)Medical Home (8)Microagressions (3)Multilingual (8)Newborn Hearing Screening (1)Newborn Screening (172)Newborn Screening Emergency Preparedness (1)Newborn Screening Family Support (2)Noninvasive Prenatal Screening (NIPS) (8)Pharmacogenetics (1)Policy (7)Pregnancy (1)Prenatal (2)Public Health (7)Public health genetics (13)Research (9)Secondary Findings (10)State Specific (3)Teleeducation (9)Telegenetics (76)Telehealth (1)Transition (22)Workforce (1)
Audience Resources Were Developed For
Administrators (23)Education (1)Educators (60)Evaluators (2)Family Support (27)Family-Led Organizations (21)Genetics Providers (372)Healthcare Interpreters (71)Healthcare Interpreting (15)Insurers (24)Midwives (6)Non-Genetics Providers (485)Patients and/or Families (365)Policymakers (34)Public Health (126)Regional Genetics Networks (97)Researchers (42)Students (50)Title V (9)