Resource Details

Parent Newborn Screening Fact Sheets

06/08/2021 9:36am
https://www.newbornscreening.info/disorder_fact_sheet/
Western States Regional Genetics Network (WSRGN)

The STAR-G Project has put together fact sheets about disorders commonly screened for by newborn screening. The fact sheets were written specifically for families that have received an initial diagnosis of one of the disorders and want to know more general information. They address issues and answer questions that are of particular concern to parents. Each fact sheet was written by a genetic counselor and reviewed by metabolic and genetic specialists.

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