Resource Details

New England Children with Genetic Disorders and Health Care Reform: Information and Recommendations for State Policymakers

06/07/2021 12:29pm
New England Regional Genetics Network (NERGN)

Report includes data gathered from an online survey of families and parents of children with genetic disorders throughout New England identifying the greatest shortcomings of insurance coverage in the areas of habilitative services. The report also includes recommendations for state policymakers regarding gaps in insurance benefits, identifies opportunities for improving coverage and availability created under the ACA, and lists resources for both policymakers and consumers, including family leadership organizations, state insurance regulators, and centers for health care reform.

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