Resource Details
Children and Youth with Special Health Care Needs Research Network
CYSHCN is a national group of child health systems researchers, families and youth, clinician partners, national organizations, and others interested in doing coordinated work to assess and improve health systems for children and youth with special health care needs. An important part of CYSHCN’s work is dedicated to supporting the next generation of CYSHCN health systems researchers, and all of their work includes families and youth as partners in each project.
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Awareness Campaign (5)Breastfeeding (1)Care Coordination (9)Careers (2)Carrier Screening (6)Condition Specific (68)Consumer Advocacy (2)COVID-19 (60)Cystic Fibrosis (1)Diagnostic Test (2)Dismantling Racism/Implicit Bias (8)Diversity (1)Diversity, Equity, Inclusion and Justice (50)Education (393)ELSI (1)Emergency Preparedness (14)Evaluation (8)Family Health History (9)Family History (1)Family Support (114)Genetic Service System (76)Genetic Test (24)Genetics Privacy (3)Health Equity (5)Health Literacy (4)Healthcare Access (17)Healthcare Access and Financing (81)Healthcare Interpreting (69)LGBTQ+ (3)Medicaid (1)Medical Food (18)Medical Home (8)Microagressions (3)Multilingual (8)Newborn Hearing Screening (1)Newborn Screening (172)Newborn Screening Emergency Preparedness (1)Newborn Screening Family Support (2)Noninvasive Prenatal Screening (NIPS) (8)Pharmacogenetics (1)Policy (7)Pregnancy (1)Prenatal (2)Public Health (7)Public health genetics (13)Research (9)Secondary Findings (10)State Specific (3)Teleeducation (9)Telegenetics (76)Telehealth (1)Transition (22)Workforce (1)
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Administrators (23)Education (1)Educators (60)Evaluators (2)Family Support (27)Family-Led Organizations (21)Genetics Providers (372)Healthcare Interpreters (71)Healthcare Interpreting (15)Insurers (24)Midwives (6)Non-Genetics Providers (485)Patients and/or Families (365)Policymakers (34)Public Health (126)Regional Genetics Networks (97)Researchers (42)Students (50)Title V (9)