Improving Access to Genetic Services for Underserved Populations

From 2004 to 2024, the National Coordinating Center for the Regional Genetics Networks (NCC) worked with the seven Regional Genetics Networks (RGNs) and the National Genetics Education and Family Support Center (Family Center) to improve access to genetic services for underserved populations. Explore the resources developed during this period below and throughout this website.
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Activities

NCC developed tools and resources to help improve access to genetic services for underserved populations.

Our efforts included the development of educational materials related to the genetic service delivery system and genetics policy; assessed the genetics workforce; raised awareness about the field of public health genetics; and supported the seven Regional Genetics Networks. This work concluded in 2024.

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ACMG ACT Sheets and Algorithms

NCC supported the development and maintenance of the ACMG ACTion (ACT) Sheets and Algorithms, a clinical decision support tool for healthcare providers.

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Genetics Policy Hub

In the NCC Genetics Policy Hub, find the information about genetics policy from across the U.S.

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Healthcare Interpreter Training

Curricula have been developed to educate healthcare interpreters on genetics.

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Resource Repository

NCC’s Resource Repository includes over 800 resources developed to support the genetic service delivery system.

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Find a Genetics Clinic Directory

Need to find a genetics clinic in the United States? Find a clinic near you and learn what type of genetic services are offered by the clinic by exploring our directory.

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Genetics Workforce

NCC routinely assessed and published information about the capacity of the genetics workforce.

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Public Health Genetics and Genomics Week

Held in May, PHGW raised awareness about the field of public health genetics and genomics.

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Webinars

Webinars were held on a variety of topics from current genetics policies to evidence-based guidelines