Resource Details
Sickle Cell Data Collection (SCDC) Program
The Sickle Cell Data Collection (SCDC) program collects health information about people with sickle cell disease (SCD) to study long-term trends in diagnosis, treatment, and healthcare access for people with SCD in the United States. The program helps to inform policy and healthcare standards that improve and extend the lives of people with SCD.
The program house Fact Sheets, Webinars, and Newborn Screening Data that will be helpful to families, health advocates, and agencies.
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