Healthcare Access and Financing

Browse and engage with legislative and insurance policies.

1. Explore Our Resources

Find information about state Medicaid programs and state/federal policy efforts.

2. Connect with Us

Engage in our LIFT blog or add policies you would like to see us track.

3. Understand Genetics Policies

By utilizing the NCC LIFT tools, you will have a better understanding of the genetic service delivery system.

Policy Engagement Tools

State and Federal Legislation and Regulations

Utilizing the CQ State/Statetrack legislative tracking system, NCC has developed tracking reports in the following categories: general genetics, genetics professionals, disease-specific, and genetic testing.

Access Here
State Medicaid Genetics Policies

NCC compiles written genetic service policies from each state Medicaid program. Find information about your state and submit up to date information.

Access Here
LIFT Alerts

Once a quarter NCC publishes the LIFT newsletter to provide an overview of the current genetic service delivery system. In addition to the quarterly memo, LIFT alerts are published when there is breaking policy news.

Healthcare Access and Financing Workgroup Information

Workgroup Members

NERGN

Karen Volle
Kim Phillips

NYMAC

Joann Bodurtha, MD, MPH
Luba Djurdjinovic, MS

SERN

Hans Andersson, MD
Rani Singh

Midwest

Jane Pilditch, MPA

Heartland

Ann Chou, PhD
Lori Williamson Dean, MS, CGC, LGC

MSRGN

Kathryn Hassell, MD
Janet Thomas, MD

WSRGN

Sylvia Mann, MS, CGC

National Genetics Education and Family Support Center

Natasha Bonhomme
Molly Martzke

HRSA

Soohyun Kim, MPH, CPH

Catalyst Center

Meg Comeau, MHA (Co-Chair)

NCC

David Flannery, MD, FACMG
Susanna Ginsburg, MBA (Co-Chair)
Annie Li
Megan Lyon, MPH
Maximilian Muenke, MD