Healthcare Access and Financing

Browse and engage with legislative and insurance policies.

1. Explore Our Resources

Find information about state Medicaid programs and state/federal policy efforts.

2. Connect with Us

Engage in our LIFT blog or add policies you would like to see us track.

3. Understand Genetics Policies

By utilizing the NCC LIFT tools, you will have a better understanding of the genetic service delivery system.

Policy Engagement Tools


  • State and Federal Legislation and Regulations

    Utilizing the CQ State/Statetrack legislative tracking system, NCC has developed tracking reports in the following categories: general genetics, genetics professionals, disease-specific, and genetic testing.

    Access Here

  • State Medicaid Genetics Policies

    NCC compiles written genetic service policies from each state Medicaid program. Find information about your state and submit up to date information.

    Access Here

  • LIFT Alerts

    Once a quarter NCC publishes the LIFT newsletter to provide an overview of the current genetic service delivery system. In addition to the quarterly memo, LIFT alerts are published when there is breaking policy news.

Healthcare Access and Financing Workgroup Information

NERGN

Peter Antal, PhD
Karen Voelle

NYMAC

Joann Bodurtha, MD, MPH
Beth Vogel, MS, CGC

SERN

Hans Andersson, MD
Ami Rosen, MS, CGC

Midwest

Jane Pilditch, MPA

Heartland

Ann Chou, PhD
Lori Williamson Dean, MS, CGC, LGC

MSRGN

Kathryn Hassell, MD
Annette Lara, MBA
Janet Thomas, MD
Kristi Wees

WSRGN

Sylvia Mann, MS, CGC

National Genetics Education and Family Support Center

Beth Dworetzky
Joel Lopez

HRSA

Soohyun Kim, MPH, CPH
Debi Sarkar, MPH

Catalyst Center

Meg Comeau, MHA (Co-Chair)

ACMG

Michelle McClure, PhD

NCC

David Flannery, MD, FACMG
Susanna Ginsburg, MBA (Co-Chair)
Alisha Keehn, MPA
Megan Lyon, MPH
Maximilian Muenke, MD

*Updated 12/2019