Connecting People to Genetic Services

The RGNs work with providers, patients, public health, hospitals, and more to connect people with genetic services.

The RGNs work with partners to help people access genetics services, including counseling, testing, education and more.

Specifically, the system focuses on patients from underserved populations. We use zip code data to determine if an individual or provider comes from an underserved area as defined by Health Resources and Services Administration (HRSA). To learn more about our data collection and evaluation program, please click here.

Below is data related to the number of people helped through RGN-support to access genetic services.

Our Previous Year (June 2020-May 2021)

The RGNs help people gain access to genetic services through one-on-one outreach, helping provide salary support to clinics, assisting patients in making genetics appointments, and much more.

In Year 4 (June 2020- May 2021), the system reached 837 people. Programs designed to help people connect with genetic services include, but are not limited to, SERN’s Metabolic Camp, working with state Family Voices Organizations, MSRGN’s Genetic Navigator program, WSRGN’s Genetics Resource Education and Advocacy Tool (GREAT).

Trends from June 2017- May 2021

Over the last four years, the RGNs have been working on increasing access to genetic services by building connections between people and the genetic service delivery system.

Due to new programs being implemented in Year 4, as well as the effects of the COVID-19 pandemic, the system saw a decline in people reached.

Connecting People to Genetic Services

41% of people who received connections to genetic services were from an underserved area.