Education and Training

125 educational events were held by the RGN/NCC/NGEFSC System from June 2020 to May 2021.

The seven Regional Genetics Networks (RGNs), the National Coordinating Center for the Regional Genetics Networks (NCC), and the National Genetics Education and Family Support Center (Family Center) educate and train people on genetics and the genetic service delivery system.

Specifically, the system focuses on developing education and training activities that help reach underserved populations. We use zip code data to determine if an individual or provider comes from an underserved area as defined by Health Resources and Services Administration (HRSA). To learn more about our data collection and evaluation program, please click here.

Below are select data from our education and training efforts, including examples of programs from across the country.

Our Previous Year (June 2020-May 2021)

Providers

The RGN/NCC/NGEFSC system regularly reaches out to professionals, which include genetics providers, non-genetics providers, public health professionals, allied health professionals, students, and many more. The goal of our educational outreach is to educate the professional in either a specific topic/condition within genetics or to educate them on system-wide initiatives, such as telegenetics, to improve access to genetic services.

In Year 4 (June 2020- May 2021), the system reached over 2,700 providers. These providers participated in events such as NERGN’s Project ECHO series, MGN’s MOC Part IV module, MSRGN Time 4 Genetics webinars, and much, much more! To see the latest educational offerings from our system, visit our calendar of activities.

Trends from June 2017- May 2021

Providers

Beyond the educational events held in Year 4, our system has worked over the last four years to provide education and training to as many providers as possible. As noted in the chart below, our system has been increasing the number of providers served per year, excluding Year 3, which saw a spike due to virtual events held due to COVID-19.

Over the last four years, educational offerings have included SERN’s eGNA platform, which helps provide education to metabolic dietitians, NYMAC’s Annual Meeting, and WSRGN’s Minority Genetics Professionals Network events.

Providers Participating in RGN/NCC/NGEFSC Education or Training Activities

 22% of providers who provided their zip code and received education or training were identified as practicing in underserved areas from June 2017 to May 2021.

Our Previous Year (June 2020-May 2021)

Individuals/Families

In addition to educating and training providers, the RGN/NCC/NGEFSC system assists in educating and training to individuals and families who have, or at risk for genetic conditions (termed individuals/families).

In Year 4 (June 2020- May 2021), the system reached 222 individuals and families. Activities included regional annual meetings, outreach via Family Voices, and webinar series.

Trends from June 2017- May 2021

Individuals/Families

As displayed below, the RGN/NCC/NGEFSC system has worked to increase outreach to individuals and families over the last four years. Individuals and families receive education and/or training through efforts such as NYMAC’s educational offerings to Puerto Rico.

Individuals/Families Participating in RGN/NCC/NGEFSC Education or Training Activities

 63% of individuals/families were identified as coming from underserved areas.