Performance Measures Defintions


Active Registred Participants

Performance Measure 1A and 3
Any individuals who enroll in an RGN-supported education or training


Baseline

Performance Measures 1A, 1B, 2, 3, and 5
Data collected and provided to HRSA for purposes of establishing the benchmark for this program objective by the end of year one of the award (June 1, 2017- May 31, 2018). (except measure 4, RGN-supported sites that use telehealth/telemedicine for genetics services.)
Source: NOFO HRSA 17-082; Page 4


Clinical site type: Genetics

Performance Measure 4
The site/entity is staffed by geneticists who apply genetics in the delivery of medical care, including evidence-based practices on the causes and inheritance of genetic disorders, and their diagnosis and management.
Source: The definition is adapted from the journal, Nature.https://www.nature.com/subjects/medical-genetics


Clinical site type: Primary Care

Performance Measure 4
Primary care often involves first-contact care for people with an undiagnosed symptom, sign, or health concern. It is defined as care for individuals which is not organ- or problem- specific; longitudinal or continuous care; and with responsibility for coordinating other health services related to a patient’s care. It is care often provided by general internists, who are particularly well equipped to provide preventive care and diagnose and manage disease in a primary care setting.
Source: Adapted the definition for primary care from the American College of Physicians: https://www.acponline.org


Clinical site type: Other specialities (e.g. cardiology, neurology)

Performance Measure 4
A location where a medical specialist provider provides clinical specialty care other than genetics.


Clinical site type: Mixed type (primary and specialty care)

Performance Measure 4
Multidisciplinary clinics that include primary care, mental health, and other specialties (excluding genetics).


Continuing Education Credits (CEUs)

Performance Measures 1A and 3
One CEU = ten contact hours of participation in organized continuing education/training experience under responsible, qualified direction and instruction.
Source: https://www.nsgc.org/d/do/2671


Continuing Medical Education (CME)

Performance Measures 1A and 3
Continuing medical education consists of educational activities which serve to maintain, develop, or increase the knowledge, skills, and professional performance and relationships that a physician uses to provide services for patients, the public, or the profession.


Education

Performance Measure 1A
The process of systematically teaching individuals to acquire and improve job-related skills and knowledge.
Source: https://en.wikipedia.org/wiki/education


Facilitated connections to a geneticist

Performance Measure 2
A genetic appointment facilitated through RGN resources, for example through a telehealth program, or indirectly through outreach and education to primary care or public health. An individual or family directly ‘served’ by the RGN is one for whom a genetic appointment has been facilitated through RGN resources.
Source: NOFO HRSA-17-082: Page 4-footnote 9


Facebook Engagement

Performance Measure 1B
When a user performs actions on your content (examples include: posting, clicking on a link, comment on a post).
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/


Facebook Impressions

Performance Measure 1B
Impressions are the number of times a post from Facebook page is displayed.
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/


Facebook Reach

Performance Measure 1B
Reach is the number of people who received impressions from a Page post. A person is only counted as “reach” regardless of how many times they see the post in their feed.
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/


Families/Individuals

Performance Measures 1A, 2, and 5
Adults, youth, and children with or at risk for genetic disorders accessing genetic services, as well as their family members.
Source: Regional Genetic Service Center Models Recommendation Brief March 31, 2016: Page 4


Genetic Services/Providers

Performance Measures 1A and 3
Services provided by a clinical geneticist, genetic counselor, or advanced practice genetics nurse, to arrive at a diagnosis; provide information on the condition to the patient, family and other providers; provide genetic counseling to the patient and family members; and ensure that care coordination for the condition is provided or in place with other providers. Some of these genetic services are provided by non-genetics physicians and other non-physician geneticists.
Source: Regional Genetic Service Center Models Recommendation Brief March 31, 2016: Page 4


Maintenance of Certification

Performance Measures 1A and 3
Activities are performed continuously with requirements at specified intervals throughout the 10-year cycle and are grouped into four parts:Professionalism and Professional Standing, Lifelong learning and self-assessment, Assessment of Knowledge, Judgment and Skills, and Improvement in Medical Practice.
Source:http://www.abmgg.org/moc/moc_progoverview.html


Medically Underserved

Performance Measures 1A, 1B, 2, 3, 4, and 5
Areas or populations designated by HRSA/HPSA as having too few primary care providers, high infant mortality, high poverty or a high elderly population. recipients, and rural communities. Individuals who reside an MUA zip code (as defined by HRSA) are considered medically underserved.
Source: NOFO HRSA-17-082: Page 1 footnote 1 http://www.hrsa.gov/shortage/find.html


Regional Genetics Network (RGN)

Performance Measures 1A, 1B, 2, 3, 4, and 5
One of seven entities funded by HRSA under HRSA 17-082.
Source: NOFO HRSA-17-082


RGN-support

Performance Measures 1A, 1B, 2, 3, 4, and 5
Support is provided by the RGN for activities through:contracts, training (includes follow-up to training), technical assistance, quality improvement, funding, purchase of equipment and supplies,memorandum of agreement or in-kind funding, education.


Service Type

Performance Measure 2
Type of genetic services such as follow-up to NBS, emergency consultation, initial appointment, etc.


Sessions (Google Analytics)

Performance Measure 1B
A session is the period time a user is actively engaged with your website, app, etc.
Source: https://analytics.google.com/analytics/web/#/


Technical Assistance

Performance Measures 2 and 4
Conducting consultations via phone, emails, or site visits.


Teleconsultation

Performance Measures 3, 4, and 5
Consultation between a provider and specialist at distance using either store and forward telemedicine or real time videoconferencing. Telephone calls are excluded.
Source: http://thesource.americantelemed.org/resources/telemedicine-glossary


Telegenetics

Performance Measures 3, 4, and 5
A genetics appointment that takes place via interactive video conferencing. Other telephonic modalities are excluded.


Telegenetic distant site

Performance Measure 4
Where the specialist is located during a telegenetics appointment.


Telegenetic originating site

Performance Measure 4
The location of the patient at the time of the genetics appointment.


Telehealth

Performance Measures 3, 4, and 5
Use of electronic information and telecommunications technologies to support long-distance clinical health care, patient and professional health-related education, public health, and health administration.
Source: NOFO HRSA-17-082: Page 1- footnote 2


Telemedicine

Performance Measures 3, 4, and 5
Use of medical information exchanged from one site to another via electronic communications to improve a patient’s clinical health status.
Source: American Telemedicine Association cited in NOFO HRSA-17-082: Page 1- footnote 3


Telehealth training

Performances Measure 3 and 4
Teaching others how to deliver genetics services via interactive videoconferencing.


Training

Performance Measures 1A and 3
Training is specific to advance the knowledge base or skillsets in medical genetics. Training may be delivered in-person or online.


Twitter Impressions

Times a user is served a Tweet in timeline or search results
Source: Twitter


Users (Google Analytics)

Performance Measure 1B
Users who have initiated at least one session during the date range.
Source: https://analytics.google.com/analytics/web/#/


Zip Code

Performance Measures 1A, 2, 3, 4, and 5
A system of postal codes used by the United States Postal Service The basic format consists of five digits.
Source: https://en.wikipedia.org/wiki/ZIP_Code