Listed below are the definitions for terms used in the HRSA Performance Measures. To view the performance measures, please click here.
Active Registered Participants
Baseline
Clinical site type: Genetics
Clinical site type: Primary Care
Clinical site type: Other specialties (e.g. cardiology, neurology)
Clinical site type: Mixed type (primary and specialty care)
Continuing Education Credits (CEUs)
Continuing Medical Education (CME)
Education
Facilitated connections to a geneticist
Facebook Engagement
Clinical site type: Genetics
Performance Measure 4
The site/entity is staffed by geneticists who apply genetics in the delivery of medical care, including evidence-based practices on the causes and inheritance of genetic disorders, and their diagnosis and management.
Source: The definition is adapted from the journal, Nature.https://www.nature.com/subjects/medical-genetics
Clinical site type: Primary Care
Performance Measure 4
Primary care often involves first-contact care for people with an undiagnosed symptom, sign, or health concern. It is defined as care for individuals which is not organ- or problem- specific; longitudinal or continuous care; and with responsibility for coordinating other health services related to a patient’s care. It is care often provided by general internists, who are particularly well equipped to provide preventive care and diagnose and manage disease in a primary care setting.
Source: Adapted the definition for primary care from the American College of Physicians: https://www.acponline.org
Conference Presentations and Posters
Performance Measures 1B
Includes:
- National meetings
- Regional meetings
- State/Local
- External Workgroups/advisory committees/steering committees
- Presentations given to internal workgroups/advisory committees/state teams do not count,
- Poster presentations should be counted from:
- National
- Regional
- State/Local
Continuing Medical Education (CME)
Performance Measures 1A and 3
Continuing medical education consists of educational activities which serve to maintain, develop, or increase the knowledge, skills, and professional performance and relationships that a physician uses to provide services for patients, the public, or the profession.
Distance Learning Modules
Performance Measure 1B
Count only modules or recorded webinars/training that RGN developed or directly-supported and are available for public access on RGN-supported website (e.g. recorded ECHO sessions, webinar sessions).
For password-protected websites/webpages, resources can be counted when anyone can sign up for an account. Password-protect websites/webpages meant for internal use cannot be counted.
For example: MGPN resources can be counted. Resources developed for the internal workgroups/teams of a RGN and cannot be counted.
Note: Recorded presentations cannot be counted in the same funding year. A recorded presentation/webinar can be counted in subsequent funding years as long as the webinar is on an RGN-supported websites. Presentation recordings on websites outside of the system are not counted. Recorded educational modules: If CME is offered and there is registration information, it will be counted under 1A.
Education
Performance Measure 1A
The process of systematically teaching individuals to acquire and improve job-related skills and knowledge.
Source: https://en.wikipedia.org/wiki/education
Facilitated connections outside of health care system to genetic services
Performance Measure 2B
When services are provided through RGN-support to connect individuals/families to genetic services (healthcare or other support services relating to the patient’s genetic conditions) outside of the healthcare system through a one-on-one communication.
Facilitated connections to a geneticist
Performance Measure 2A and 2B
A genetic appointment facilitated through RGN resources, for example through a telehealth program, or indirectly through outreach and education to primary care or public health. An individual or family directly ‘served’ by the RGN is one for whom a genetic appointment has been facilitated through RGN resources.
Source: NOFO HRSA-17-082: Page 4-footnote 9
Facebook Engagement
Performance Measure 1B
When a user performs actions on your content (examples include: posting, clicking on a link, comment on a post).
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/
Facebook Impressions
Performance Measure 1B
Impressions are the number of times a post from Facebook page is displayed.
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/
Facebook Reach
Performance Measure 1B
Reach is the number of people who received impressions from a Page post. A person is only counted as “reach” regardless of how many times they see the post in their feed.
Source: https://www.commercialwebservices.com/blog/2017/06/20/crash-course-impressions-reach-and-engagement/
Families/Individuals
Performance Measures 1A, 2, and 5
Adults, youth, and children with or at risk for genetic disorders accessing genetic services, as well as their family members.
Source: Regional Genetic Service Center Models Recommendation Brief March 31, 2016: Page 4
Genetic Health Care Services
Performance Measures 2A
Genetic health care service is defined as a consultation between a patient and a health care provider trained in medical genetics or genomics (clinical geneticist, genetic counselor, metabolic dietitian, genetic nurse). The consultation is done for the purpose of screening, testing, diagnosis, treatment, and/or clinical support for a potential genetic condition.
Instagram Reach
Performance Measures 1B
The number of unique accounts that saw any of your posts or stories at least once.
Source: https://business.facebook.com/business/help/665980910626369
Live Webinar
Performance Measures 1A
A seminar or other presentation that takes place on the internet, allowing participants in different locations to see and hear the presenter, ask questions, and sometimes answer polls.
Source: https://www.dictionary.com/browse/webinar
Maintenance of Certification
Performance Measures 1A and 3
Activities are performed continuously with requirements at specified intervals throughout the 10-year cycle and are grouped into four parts:Professionalism and Professional Standing, Lifelong learning and self-assessment, Assessment of Knowledge, Judgment and Skills, and Improvement in Medical Practice.
Source:http://www.abmgg.org/moc/moc_progoverview.html
Medically Underserved
Performance Measures 1A, 1B, 2A, 2B, 3, 4, and 5
Areas or populations designated by HRSA/HPSA as having too few primary care providers, high infant mortality, high poverty or a high elderly population. recipients, and rural communities. Individuals who reside an MUA zip code (as defined by HRSA) are considered medically underserved.
Source: NOFO HRSA-17-082: Page 1 footnote 1 http://www.hrsa.gov/shortage/find.html
Other Resources
Performance Measures 1B
Includes books, book chapters, electronic products (DVDs, audio, videotapes), doctoral dissertations, academic course development, reports and monographs (includes policy briefs and best practices reports).
If your resource does not fall into any of the other categories, discuss the specific product with NCC (who will consult with HRSA).
Pamphlets
Performance Measures 1B
Count those that are not available electronically and were not counted in web-based product, (e.g., printed products).
Note: Includes unique flyers handed out at in-person meetings. It is a count of the number of flyers, not how many flyers are handed out. If the flyer is available online and counted as a web-based resource, it is not counted.
Previously Supported Site
Performance Measures 4
Previously supported clinic sites are those clinics that previously received RGN support in the previous funding years (since 2017) and did not receive any RGN support during the funding year but continued to offer telegenetic services and submitted patient data for PM 5
Primary Care Provider
Performance Measures 1A and 3
A physician (M.D. – Medical Doctor or D.O. – Doctor of Osteopathic Medicine), nurse practitioner, clinical nurse specialist or physician assistant, as allowed under state law, who provides, coordinates or helps a patient access a range of health care services.
Source: https://www.healthcare.gov/glossary/primary-care-provider/
Published Peer-Reviewed Publications
Performance Measures 1B
Publication must be RGN-supported (includes the funding acknowledgment language):
- For collaborative papers across the system, the lead RGN, NCC, or Family Center gets to count the publication.
-
- For partnerships outside of the system, papers can be counted when the RGN author’s time is supported by the RGN.
- Examples: Journal articles in Genetics in Medicine, Journal of Genetic Counseling, etc.
Regional Genetics Network (RGN)
Performance Measures 1A, 1B, 2, 3, 4, and 5
One of seven entities funded by HRSA under HRSA 17-082.
Source: NOFO HRSA-17-082
RGN-support
Performance Measures 1A, 1B, 2, 3, 4, and 5
Support is provided by the RGN for activities through:contracts, training (includes follow-up to training), technical assistance, quality improvement, funding, purchase of equipment and supplies,memorandum of agreement or in-kind funding, education.
Select Recorded Webinar
Performance Measures 1A
Recorded webinars count when there is a registration and include educational content (i.e. CME/CEU offerings)
A webinar is a seminar or other presentation that takes place on the internet, allowing participants in different locations to see and hear the presenter, ask questions, and sometimes answer polls.
Sources: HRSA and https://www.dictionary.com/browse/webinar
Select RGN-Education Events
Performance Measure 1A
Internal groups (workgroups, state teams, advisory committee, etc.) that include an educational component. This means that the meeting has an invited speaker (can be an RGN, NCC, or NGEFSC staff member) and has a set goal/learning objective that expands participants’ genetics or genetic service delivery knowledge. Activity updates, needs, assessment, strategic discussions, and/or information sharing do not count as education.
Please use this flow chart to determine if an event can be counted.
Sessions (Google Analytics)
Performance Measure 1B
A session is the period time a user is actively engaged with your website, app, etc.
Source: https://analytics.google.com/analytics/web/#/
Technical Assistance
Performance Measures 3
Technical assistance to a provider is about helping that individual provider with “mutual problem solving and collaboration on a range of issues, which may include program development, clinical services, collaboration, program evaluation, needs assessment, and policy and guidelines formulation. It may include administrative services, site visitation, and review/advisory functions”.
Teleconsultation
Performance Measures 3, 4, and 5
Consultation between a provider and specialist at distance using either store and forward telemedicine or real time videoconferencing. Telephone calls are excluded.
Source: http://thesource.americantelemed.org/resources/telemedicine-glossary
Telehealth
Performance Measures 3, 4, and 5
Use of electronic information and telecommunications technologies to support long-distance clinical health care, patient and professional health-related education, public health, and health administration.
Source: NOFO HRSA-17-082: Page 1- footnote 2
Telemedicine
Performance Measures 3, 4, and 5
Use of medical information exchanged from one site to another via electronic communications to improve a patient’s clinical health status.
Source: American Telemedicine Association cited in NOFO HRSA-17-082: Page 1- footnote 3
Twitter Followers
Performance Measure 1B
Followers are people who receive your Tweets.
Source: https://help.twitter.com/en/using-twitter/following-faqs#:~:text=Followers%20are%20people%20who%20receive,they%20log%20in%20to%20Twitter
Twitter Impressions
Performance Measure 1B
Times a user is served a Tweet in timeline or search results
Source: Twitter
Users (Google Analytics)
Performance Measure 1B
Users who have initiated at least one session during the date range.
Source: https://analytics.google.com/analytics/web/#/
Web-Based Downloadable Resources
Performance Measure 1B
- A standalone PDF/file, that is not a video, that RGN developed or directly supported
- Includes:
- Toolkits (social media, public awareness campaigns, educational, training, etc). Each toolkit is counted as one resource.
- Example: Public Health Genetics Week social media resources (graphics, sample text posts, GIFs) count as one resource.
- Fact Sheets
- Infographics
- Algorithms
- Apps
- Podcasts
- Toolkits (social media, public awareness campaigns, educational, training, etc). Each toolkit is counted as one resource.
- Includes:
Web-Based Website Resources
Performance Measure 1B
- Count individual webpage (based on the site map) that has content on available resources and/or information relevant to program priorities.
- A webpage should have additional/new information other than the content of the resource counted above. Webpages count:
- If a webpage provides information about the RGN produced resources as well as other existing available resources. e.g. “Resource for families page on telehealth” page that has a curated list of resources on this topic
- Examples: NYMAC Telegenetics Webpage, MSRGN State-Specific Webpages
- If the webpage has embedded RGN-supported resource. (E.g. Find a clinic, ReRe, etc).
- A webpage does not count if:
- It duplicates the info exactly that is from a resource that was already counted.
- A webpage that has the same content of an infographic that is also available in a PDF elsewhere and that infographic was already counted above
- Example: NYMAC When to Refer to Genetics would count under PDF, not webpage.
- A landing page “Resources for providers” that lists out the sub-categories of resources and links to the subpages
- A “Project ECHO” page that just has links to all the previous recorded sessions
- General pages like About Us, Contact Us
- It duplicates the info exactly that is from a resource that was already counted.
- If a webpage provides information about the RGN produced resources as well as other existing available resources. e.g. “Resource for families page on telehealth” page that has a curated list of resources on this topic
Zip Code
Performance Measures 1A, 2A, 2B, 3, 4, and 5
A system of postal codes used by the United States Postal Service The basic format consists of five digits.
Source: https://en.wikipedia.org/wiki/ZIP_Code
Zip Code
Performance Measures 1A, 2, 3, 4, and 5
A system of postal codes used by the United States Postal Service The basic format consists of five digits.
Source: https://en.wikipedia.org/wiki/ZIP_Code
Youtube Views
Performance Measures 1B
On YouTube a view is counted when someone watches 30 seconds of your video ad ( or the duration if it’s shorter than 30 seconds) or interacts with the ad, whichever comes first.
Source: https://www.youtube.com/intl/en-GB/ads/resources/beginners-guide-to-video-insights-metrics/#:~:text=a%20potential%20customer.-,Views,the%20ad%2C%20whichever%20comes%20first.